Meet the family seeking to fund research into a rare disease that afflicts their two boys. In this webinar, Ed Boyden and Jerzy Szablowski will talk about how synthetic biology can help develop tools ...

View Full Profile. Learn about our Editorial Policies. Twenty years ago, Ilyce Randell and her husband received devastating news: their son Maxie, who was a little over four months old at the time, ...

and lagging weight gain—the family pursued consultations with specialists. After months of delays due to the pandemic, an MRI in August 2021 confirmed a diagnosis: Canavan disease, a rare and ...