Chip Chick on MSN4mon
He Made It Clear He Never Wanted Kids Since He's A Carrier Of A Genetic Disease That His Brother Died From, But His Fiancée Believed She Could Change His Mind A…
That's because, when he was just 9 years old, his little brother tragically passed away from a rare and incurable genetic ...
The Scientist11mon
Slow March Toward a Canavan Cure
Twenty years ago, Ilyce Randell and her husband received devastating news: their son Maxie, who was a little over four months old at the time, had Canavan disease. Maxie would ... the couple contacted ...
The Scientist6y
Canavan disease
Meet the family seeking to fund research into a rare disease that afflicts their two boys. In this webinar, Ed Boyden and Jerzy Szablowski will talk about how synthetic biology can help develop tools ...
WCVB Channel 5 Boston27d
Clinical trial provides hope for Mass. child with rare genetic disorder
WE WERE QUITE LITERALLY THE FIRST PEOPLE TO BE TOLD LIKE, HERE’S SOMETHING THAT YOU CAN HAVE SOME, SOME, SOME HOPE. DOCTORS AT UMASS CHAN MEDICAL SCHOOL BEGAN WORKING ON CANAVAN DISEASE IN 1989.