Making memories is something most people do everyday, sometimes without realizing just how important memories can be.

The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next ...

The exact number of kids with Batten disease remains unknown; however, some researchers have estimated it affects around three out of every 100,000 children in the U.S. Two of Tracy VanHoutan's ...

The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next few months if negotiations over its price fail.

Louis have described the neurodegeneration that occurs in the nervous system of the bowel in Batten disease, a rare and fatal genetic condition. In their latest study, a team led by Jonathan ...

Researchers at WashU Medicine have described the neurodegeneration that occurs in the nervous system of the bowel in Batten disease, a rare and fatal genetic condition. In their latest study ...

The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.

William & Mary has received a $50 million gift from Dr. R. Todd Stravitz and the Brunckhorst Foundations. It’s the largest ...

The community has rallied around the family of a young girl diagnosed with an extremely rare degenerative condition.

Anna Lowri Roberts is one of 39 people in the UK with CLN3 Batten Disease The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens.