2024年12月20日 · Hear stories and find community at BreatheCon. BreatheCon is a two-day virtual conference created by and for adults with CF. Register today to hear inspiring firsthand accounts, share your own story, and spend time with others who understand life with CF.

To ensure that people with CF continue to experience steady gains in length and quality of life, the Foundation helps its accredited care centers provide a standard of CF care with guidelines. We base guidelines on the latest research, medical evidence, and …

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

Compass is a personalized, one-on-one service that provides people living with cystic fibrosis and their families a partner in dealing with challenges related to life with CF, no matter where you are in your CF journey.; AIRS-accredited Compass case managers help with complex challenges, including understanding insurance basics, troubleshooting …

Because cystic fibrosis is a complex disease, it requires a team approach with you or your child at the center. Your CF care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.

Despite its prevalence and impact, there is no CF-specific guidance for the assessment and management of pain. The Cystic Fibrosis Foundation assembled an expert panel of clinicians, researchers, people with CF, and caregivers to develop consensus recommendations for pain management in CF.

2023. CYSTIC FIBROSIS FOUNDATION. PATIENT REGISTRY HIGHLIGHTS. 33,288. People in the Registry. 100,648. Clinic Visits. 12,569. Telehealth Visits. 10,164. Hospitalizations

We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!

People with CF are living longer than ever before with the median predicted survival age continuing to increase. Regular Care Center Visits Visiting your care center at least four times a year is a very important part of managing your health with CF. During these visits, your CF care team will work with you to develop and revise your treatment plan and monitor your health.

CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.